© Gastrectomy Connections 2017

Michelle Lykokapis (Potter)

Gastrectomy Connections Site Manger and Page Creator - Melbourne, Australia

Hi, my name is Michelle. I was diagnosed with stomach cancer in March 2011 and had my total gastrectomy on 19th July 2011. I was given nutritional support from the Peter MacCallum Cancer Foundation in Melbourne Australia, but after leaving hospital I was left to work it out on my own. I wanted a place where I could meet others in a similar situation to me so I created the Support Page for Partial & Total Gastrectomy Patients in July 2012. Here I could connect to others in the same situation, swap stories and information.  Since 2012 the Page grown to over 2000 members and has taken on a life of its own.  A website seemed the next logical place to evolve as a community of stomachless friends.

Liza Withda-z Pequeno

Facebook Page Administrator - St. Louis, Missouri

Hi my name is Liza and I am from St. Louis, MO. A proud mother of a Navy Sailor and a daughter that has Autism. I am a Stomach Cancer survivor who the doctors said wouldn't live and I am here celebrating no signs of cancer for 2 years now. I have had a Partial Gastrectomy removing 80% of my stomach.

Summer Dawn

Facebook Group Administrator - Saskatchewan, Canada

I'm Summer, I'm a stay at home mom & farm wife to three beautiful children and supportive hubby. I carry the CDH1 gene mutation and had my prophylactic total gastrectomy on March 12 2015. My pathology came back clear with no trace of cancer.  I love to bake and cook and plan to load up delicious protein packed, tolerant (for me & hopefully you too) recipes & ideas! I also run a FB Group for those wanting to discuss pregnancy post op.  https://m.facebook.com/groups/262870400860370 I look forward to connecting with you all and hopefully helping you through this journey as well!
 

Melani Flockhart Vincelli

Facebook Group Administrator - Brick Township New Jersey, United States

Hi! My name is Melani Vincelli. I am a wife, mother and grandmother. If you ask about my grand daughter, be prepared to sit and stay for awhile… I am a 9 year stage 4 stomach cancer survivor. In the beginning of my battle, I was given 6 to 9 months to live. In 2009 after 6 rounds of chemo and a total removal of my stomach, I have been cancer free. Through my cancer fight, I discovered that I am also a carrier of the BRCA2 gene and had a proactive double mastectomy in 2014. I am the South New Jersey founder of Debbie’s Dream Foundation: Curing Stomach Cancer. http://www.debbiesdream.org/portal/home

Rachel Israel Zetooney

Facebook Group Administrator - Eatontown New Jersey, United States

Hi. I am Rachel. I am a stay at home mom to two boys and a former trial attorney. I had lap band surgery in 2005, which caused damage to my esophagus, resulting in a severe swallowing disorder. I had numerous dilations, stents, Botox and exploratory surgery to try to open my esophagus. When none of these worked, it was recommended that I have an esophojeojunoctomy, which would allow me to swallow using gravity. I had my surgery in March 2013. I was unable to find any support groups and the idea of complete stomach removal was very frightening. I found a few women on line who had gone through this and we started a small chat. We discussed vitamins, food, diet plans and life. These chats have formed lifelong friendships. Over time more people were added and I started the support group, Stomachless Living - Support for Total and Partial Gastrectomies.

 

I found that helping others in their journey has helped me in mine. Having swallowing issues is very scary and people just simply are unable to understand. I have met the most amazing people through my stomachless journey. One of those people is Michelle and I am so happy to be a part of this website.

Terri Moody-Maxwell

Facebook Group Administration - Belleville, Ontario

Hello my name is Terri and I am very excited to be back as an administrator to this amazing Support Group. Sept 1 2011 at Mount Sinai in Toronto Ontario Canada I had my Total Gastrectomy to remove my stomach and eliminate any chance of future cancer reoccurance. I was diagnosed with Signet Ring cell Adenocarcinoma and with it being in the middle of my stomach a Partial Gastrectomy was not an option. Since then I had to have my gallbladder removed. Looking forward to supporting others where I can with my personal experiences.

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